The trial drug is working and my life is before me

TauRx trial -- ain't nothing but the real thing, baby

I am not on a placebo. I am on the real LMTM, because so much is more clear. I still can't do math above 20, still can't read music, still can't multi-task, still get confused, still can't find common words -- but I have an absolute solid sense that WE ARE ONTO SOMETHING HERE!

I know I am not on the placebo because the clarity with which I see/perceive has changed radically in the last six weeks -- as if running the windshield wipers and realizing how dirty the windshield was.

For the first time in 3+ years since the diagnosis, I have not just hope, but a deep inner sense that the rest of my life is before me.

Tau. Wow.

Thank you, God, how can I help?

Yes!!!! I am scheduled to begin the Phase 3 trial of LMTM next week. I'll be on a placebo or the real drug for 18 months, followed be an offer for the real drug. If my hunch about tau (St Francis??) is right....wow....Thank you God, how can I help!

Latest news

Time to get off the river of denial (again) and admit that life is more difficult. The last 4-5 months I have had more moments of complete confusion merging on panic at times, but so far, I can pause when agitated, breathe deeply, slow down, and get myself oriented. But it does mean I need to continue to slow WAAAY down. I also bought a labeling machine, which I will set aside a day to learn how to use and get on it.

I have to be very careful about tidying up. I've never been a neat freak, nor have I been a slob, but my ability to live in a state of 'messiness-light' -- those days are gone. I need clarity, structure, lists, labels -- so I need to find and nurture my inner neat freak (if she exists!)

I'm now on 20 mg Donepezil (generic Aricept) and after a couple of miss-starts, have titrated up slooowwwly to 20 mg Namenda -- both 10mg, twice daily.

Turns out my sense that chewing nicotine gum helps is true according to a recent study, and I'll check with Dr. Starkey re the nasal insulin, as I suspect glucose is an issue.

The latest report from NIH -- reasearch is ridiculously slow (IMHO), but promising

2011-2012 Alzheimer's Disease Progress Report