My hope is to help take Alzheimer's Disease out of the shadows, to affirm life can be joyous and free no matter what, and to share strength, hope and yes -- LAUGHTER -- with anyone affected by Alzheimer's Disease.
Saturday, March 28, 2015
Thursday, January 22, 2015
Onto the open label LMTX...yesyes...
Yesterday, I started on the open label for LMTX, which the article below says had a 90% success rate in stopping the progression in its Phase 2 trials. I just completed the 18-month Phase 3 trial four weeks ago, and yes, while I still have limitations, I (and my neurologist) can attest that things have not gotten worse.
I am SO very grateful to Professor Claude Wischik, MD, PhD and everyone at TauRx and the San Francisco Clinical Research Center.
First Evidence of Potential Efficacy of Tau Aggregation Inhibitor Therapy in Alzheimer’s Disease
Friday, October 31, 2014
All is well
A long overdue update, but the good news still holds: no further decline in cognitive function. If this is as bad as it gets, with careful attention to details ("Be in the Now" is not just a spiritual exercise -- it's a way of getting through each day) and with acceptance of my limitations -- I will be very much OK!The Phase 3 LMTX trial will be going 'open label', meaning I will continue on with the trial drug (and I am quite sure I am on the 'real thing' based on my initial reaction to it many months ago) until it gets approved and fast tracked through the FDA
Gratitude
gratitude
gratitude
Wednesday, January 1, 2014
New Year, renewed hope
I'm greeting this new year with renewed hope that I am really onto something here with the LMTM Phase 3 trial. At my last session, I did not sense any decline in my cognitive tests (still difficulty with remembering lists and any math past 20 is still gone for me, but nothing is worse). The psychologist stated he saw improvement in 'persistent cognition' and the nurse said she has seen really positive results in many of the participants in the trial.
So it's not just my hopeful Irish imagination!
Sunday, September 8, 2013
The trial drug is working and my life is before me
I am not on a placebo. I am on the real LMTM, because so much is more clear. I still can't do math above 20, still can't read music, still can't multi-task, still get confused, still can't find common words -- but I have an absolute solid sense that WE ARE ONTO SOMETHING HERE!
I know I am not on the placebo because the clarity with which I see/perceive has changed radically in the last six weeks -- as if running the windshield wipers and realizing how dirty the windshield was.
For the first time in 3+ years since the diagnosis, I have not just hope, but a deep inner sense that the rest of my life is before me.
Tau. Wow.
Wednesday, June 5, 2013
Thank you, God, how can I help?
Yes!!!! I am scheduled to begin the Phase 3 trial of LMTM next week. I'll be on a placebo or the real drug for 18 months, followed be an offer for the real drug. If my hunch about tau (St Francis??) is right....wow....Thank you God, how can I help!
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